What does respect for persons require in human-participant research?
Respect for persons supports people’s voluntary choice about whether to participate in research.
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What does respect for persons require in human-participant research?
Respect for persons supports people’s voluntary choice about whether to participate in research.
What does beneficence require researchers to do?
Beneficence calls for reducing possible harm and considering potential benefits.
What does justice require in research?
Justice requires a fair distribution of research burdens and benefits.
What is informed consent?
Informed consent is a process that helps a person decide freely whether to participate; it is not merely a signed form.
What makes research consent voluntary?
Participation must be voluntary. People should be told they may decline or withdraw, and consent must not involve coercion or undue influence.
How do privacy and confidentiality differ?
Privacy concerns a person’s control over access to themselves and their information; confidentiality concerns how researchers protect information they collect.
Name three practices that help protect participant information.
Collect only needed information, limit access to authorized team members, and explain honestly what confidentiality can and cannot guarantee.
Why might removing names fail to de-identify an interview quotation?
Removing names may not prevent recognition if a quotation includes distinctive details such as a person’s job, location, or life event.
What is data stewardship?
Data stewardship is the responsible management of research data throughout its life cycle.
What can a data management plan specify?
A data management plan can specify what data will be collected, who can access it, how it will be secured, how long it will be retained, and whether and how it may be shared.
How can researchers document changes while preserving original measurements?
Preserve a documented, read-only copy of original measurements and record corrections in an analysis log to distinguish source data from later processing.
What is a research conflict of interest, and what should researchers do about it?
A conflict of interest is a secondary interest that could compromise, or appear to compromise, research judgment. Researchers should disclose relevant interests so they can be assessed and managed.